⏳ While you wait
What you can do at home starting today
If you’re on a waiting list for diagnosis or therapy, this 8-week plan helps you get started: connecting, communicating, preparing for what’s next and understanding meltdowns. Based on the WHO caregiver program and the NICE guidelines.
Where this plan comes from
We built it from the strategies with the most evidence for mom, dad or whoever cares for the child to support them at home: the World Health Organization (WHO) Caregiver Skills Training program, the UK’s NICE guidelines, the IMSS (Mexican Social Security Institute) guideline and the most recent research reviews. The sources are at the end.
It’s support for the waiting time. It doesn’t replace evaluation or therapy: keep looking for the appointment and bring what you write down.
How to use it
- One week at a time. If something didn’t work, repeat the week: it isn’t a race.
- Choose 2 moments of the day that already exist and practice there.
- Take notes and record short videos: they really help the specialist.
- What you learn one week stays and adds up to the next.
Don’t wait for the appointment if…
These signs need prompt medical attention. Go to their pediatrician, the emergency room or your clinic without waiting for the list.
- They lose skills they already had: words, play, connection with you, walking or using their hands.
- They have seizures or moments when they “switch off”, stare and don’t respond.
- They hurt themselves in ways that leave wounds or marks.
- They lose weight, stop growing or accept fewer and fewer foods. Check their curve in the growth calculator.
- They snore loudly or stop breathing for moments while asleep.
- Their behavior changes suddenly: it may be pain (ears, teeth, stomach, constipation) they can’t tell you about.
- They eat things that aren’t food, or run out into the street without sensing danger.
- They don’t seem to hear: ask for a hearing test if they haven’t had one.
The plan, week by week
Tap each week to open it. Each one has a main idea and concrete things to practice.
- 1
Observe and get ready
Before changing anything, get to know their day well.
This week you just watch and take notes. It helps you understand your child, and helps the specialist get to know them.
- What they love: toys, songs, foods, movements (jumping, spinning, being carried).
- How they ask for things: pulls your hand, cries, points, takes you to the fridge, says a word.
- What upsets them: noises, changes, hunger, sleepiness, certain places.
This week- Choose 2 daily moments to practice in the coming weeks (for example, after bath time and at meals).
- Start a 2-week sleep diary: what time they fall asleep, how many times they wake up and what time they get up.
- Review the list of warning signs and record 2 or 3 short videos of what worries you.
- 2
Enter their world
Connect first; teach later.
Children communicate more when we’re interested in what interests them.
- Get down to their level and face them, so they can see your face without effort.
- Remove distractions: TV off, few toys in sight.
- Offer 2 or 3 options and follow the one they choose, even if it’s “odd” (lining up cars, opening and closing a door).
- Imitate them: if they line up cars, line up others next to them. If they make a sound, repeat it.
This week- 10 minutes a day of “playing their way”, with no questions or instructions.
- Write down when they looked at you, came closer or reached for you to keep going.
- 3
Games that repeat
Short, fun routines where you both take part.
A game that always goes the same way gives them security and leaves room for them to join in: bubbles, tickles, “ready… set… go!”, tossing them onto the bed, a song with movements.
- Always the same: same words, same order. They learn what comes next.
- Turns: you blow a bubble, they pop one; you sing, they clap.
- Pause before the best part (“ready… set…?”) and wait for them to show they want more: a look, a sound, a gesture.
- Once they’ve got it, add a small new step, showing it and saying it.
This week- Make up 2 short repeating games and play them every day.
- Count how many times they ask for “again” in whatever way they can.
- 4
Understand how they communicate
Everything they do to ask for or refuse something is communication.
- Respond to every attempt, even if it isn’t clear: if they pull your hand toward the fridge, “you want juice? juice!”.
- Wait 5 to 10 seconds with a “what next?” look before helping. That silence gives them room to try.
- Keep it short: 1 or 2 words more than they use. If they don’t talk, single words: “water”, “more”, “up”.
- Narrate what they look at or do: “car… fast… boom!”.
This week- Practice waiting during your 2 moments of the day.
- Make a list of the ways they ask for things: it’ll help at the appointment and for choosing their first buttons.
- 5
Chances to ask, with pictures
Use the board yourself so they see it work.
- Create reasons to ask: their favorite things in sight but out of reach, or give them “just a little” so they ask for more.
- Model on the board: when you talk, tap the buttons yourself on the Mi Voz app or a printed board: “more”, “help”, “again”, “all done”. Without requiring them to tap. That’s how we all learned to talk: listening a lot before speaking.
- If they tap a button, even by accident, give them what they said. That’s how they discover it works.
- If they say a word or make a sound, repeat it and add one more: “water” → “more water”.
Do pictures make them less likely to talk? No. Research reviews show that communicating with pictures doesn’t hold back speech, and in some children it helps a little. The main goal is for them to be able to communicate right now.
This week- Keep the app or the board always within reach, not put away.
- Model 5 times a day, during your practice moments, without asking for anything in return.
- 6
Help them know what’s next
Predictability brings calm.
- Picture schedule for the morning or bedtime: bath → pajamas → teeth → story → sleep. In the app it’s under Schedule, or print it from Materials.
- “First / Then”: “first shoes, then park”. What they don’t like first; what they like after.
- Give a heads-up before switching activities: “5 more minutes”, a timer or a countdown.
- Bedtime routine: same time, low light, no screens for an hour before, and the bed only for sleeping. Adjust with what the sleep diary showed you.
This week- Make a 3- to 5-step schedule for a hard moment of the day and use it every day the same way.
- Use “First / Then” at least once a day.
- 7
Meltdowns
Understand why they happen so they happen less.
A meltdown isn’t a tantrum: it’s an overwhelmed brain. Watch the video “It’s not a tantrum, it’s a meltdown”.
- During the meltdown: calm, safety and few words. Move dangerous things away, lower the noise and wait. It’s not the time to teach or scold.
- Afterwards, look for the cause. Write down what happened before, what they did and what happened after. It’s almost always one of these: they wanted something, wanted to avoid something, were seeking a sensation, or something hurt.
- Check for pain: ears, teeth, stomach, constipation. If they can’t say it, it shows in their behavior.
- Teach them another way to say it: a “break”, “help” or “I don’t want to” button. When they use it, respect it.
This week- Write down every meltdown: what happened before, during and after. Look for what repeats.
- Put “break” and “help” on their board, and model them at calm moments.
- Practice Breathe with me when they’re calm, as a game.
- 8
Small steps, and taking care of you
What comes next, and who takes care of you.
- One skill, in tiny steps: washing hands (turn on, wet, soap, rub, rinse, dry). Help as little as possible and celebrate each step.
- Food without a fight: one new food, in a tiny piece, next to one they do eat. No forcing. More ideas in Food.
- Prepare for the appointment: gather your notes, the sleep diary, the meltdown log and the videos. Write down your 3 most important questions.
- Take care of yourself: sleep what you can, ask for specific help (“could you watch him for an hour on Saturday?”), and talk with other families in Guide families. It isn’t selfish: your child needs you well.
This week- Choose one household skill and break it into steps.
- Write your summary for the appointment and go back to the week that helped you most.
In the meantime, look for…
- The evaluation: ask their pediatrician for a referral. Public options in The path and in the directory.
- A screening test: if your child is 16 to 30 months old, their doctor can use the M-CHAT-R/F (free). At your local health center (centro de salud) they can apply the EDI child development test, for children under 5.
- Paperwork that takes time: disability certificate, pension and ID card. Start now in Paperwork and rights.
And watch out for…
- Anyone who promises to “cure” autism or help a child “recover” from it.
- Gluten-free and casein-free diets, chelation, hyperbaric chambers, stem cells, MMS: they don’t work for autism and some are dangerous.
- Expensive packages you have to pay for up front.
Check the Therapy traffic light and Watch out for… before you pay.
Sources
For anyone who wants to check where each recommendation comes from.
Sources
For anyone who wants to check where each recommendation comes from.
- 🌍 International · WHO. Caregiver Skills Training for families of children with developmental delays or disabilities, 2022, and caregiver well-being module, 2026. This plan is inspired by its principles; it is not an official WHO adaptation. who.int
- 🇬🇧 United Kingdom · NICE CG170: autism in under-19s, support and management (parent-mediated social communication, sleep, feeding, behavior and what should not be used). nice.org.uk
- 🇬🇧 United Kingdom · NICE CG128: recognition and diagnosis (loss of skills). nice.org.uk
- 🇲🇽 Mexico · IMSS. Clinical Practice Guideline IMSS-528-12, Diagnosis and management of autism spectrum disorders (in Spanish). imss.gob.mx
- 🇺🇸 United States · Sandbank et al. Interventions for autistic children, Project AIM meta-analysis. BMJ, 2023. pmc.ncbi.nlm.nih.gov
- 🌍 International · Oono et al. Parent-mediated early intervention for autism. Cochrane Review, 2013. cochranelibrary.com
- 🇺🇸 United States · NCAEP. Evidence-based practices for autistic children, 2020. ncaep.fpg.unc.edu
- 🇺🇸 United States · Schlosser and Wendt. Augmentative communication does not hold back speech. Systematic review, 2008. pubmed
- 🇺🇸 United States · O’Neill, Light and Pope. Modeling with augmentative communication, meta-analysis, 2018. pubmed